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Leslie Daniel-Jack's avatar

I was diagnosed with PKD (Polycystic Kidney Disease) at 17. In my family, it is genetic on my mom’s side. I lived my life knowing that I would have renal failure. The unknown was when. So, in my late 40’s I started peritoneal dialysis and was put on the kidney transplant list, but I knew it could take years to get a kidney. One day, while chaperoning my son on a band trip, I met the wife of my son’s scoutmaster who was also chaperoning. After a dozen questions about PKD, dialysis and transplants, we went our separate ways. Or so I thought. She contacted my husband, went through the necessary tests and spoke with a close friend who had donated his kidney to his brother. One day, she and her husband came over and very generously offered to donate a kidney to me. That was over 16 years ago and I am doing well. It is because of her generosity that I am still here today. We are still friends and see each other often. Kidney sisters forever.

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Lynette Dennis's avatar

I was born with a rare genetic disease called Ehlers Danlos Syndrome. A disease that most doctors have to google (which is quite frustrating). The disease is a breakdown of connective tissue which is pretty much the entire body inside and out. While the world was shut down to COVID I was living a nightmare unable to eat because my stomach became paralyzed as well as my colon. I was down to 82 pounds before I got the help I needed. The first thing I got was a gastric pacemaker (yeah they make those) but that didn't fix everything, so this past September I had my colon removed and a permanent ileostomy. You would think my crazy story would end there but due to my Ehlers Danlos, my veins are super fragile and I was rushed back into emergency surgery because I was internally bleeding. I truly thought I was going to die. I was in ICU for a week. I am up to 102 pounds now and able to work out. I am SURE that God saved my life and kept me here for a purpose. This was a truly pivotal moment in my life. I think God had to break me down to use me.

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